Navigating Life's Unexpected Turns: Allison Rosen's Journey with Colorectal Cancer and Living with an Ostomy

Today, I'm thrilled to introduce you to a remarkable guest, Allison Rosen. Our paths crossed at the UOAA annual convention, and it was truly heartwarming to meet someone in person whom I'd connected with on social media.

Allison's story is nothing short of inspiring. Her journey began in the world of cancer research at the American Cancer Society, a world she knew well, having been diagnosed with Crohn's disease at the age of 12. After several years in remission, life took an unexpected turn. Unusual symptoms, the kind that prompt anyone to sit up and take notice, led to a diagnosis of colorectal cancer. This is a poignant reminder of the significance of regular check-ups and colonoscopies; they can truly be life-saving.

Before cancer, Allison was working diligently in cancer research in Houston, Texas. She had previously received a clean bill of health during a routine colonoscopy, and life seemed to be on a smooth path. However, the gradual onset of concerning symptoms eventually culminated in the shocking moment of a colorectal cancer diagnosis. Alison found herself seeking multiple surgical opinions and ultimately chose MD Anderson for her treatment. Her journey emphasizes the importance of personalized care and finding the right medical team.

Living with an ostomy can be daunting, and Allison had her hesitations initially. Post-surgery, she opted for a J-pouch, a choice she reflects upon today. Her journey has taught her that education is key to dispelling myths about life with an ostomy.

One of the most common questions people have about living with an ostomy revolves around eating normal food, wearing regular clothes, and navigating relationships. Allison shares her personal experiences with dating and relationships post-ostomy. The ostomy community plays a vital role in providing support, breaking stigmas, and sharing stories. Alison's social media posts about her ostomy have garnered a positive response, reinforcing the power of community.

Allison's journey also includes a unique aspect—naming her ostomy, affectionately called "Phil." She fondly recalls the first time she wore a bikini post-surgery, proudly embracing her scars and ostomy. It was a moment of personal triumph that the ostomy community understood and celebrated with her.

Beyond her own experience, Allison's advocacy work extends to volunteering with cancer support programs and ostomy associations, providing guidance and support to those considering or living with an ostomy. The impact of sharing personal stories and experiences is immeasurable.

So, what are the top three questions Allison receives about ostomies? They revolve around eating normal food, wearing regular clothes, and concerns about relationships. Education plays a crucial role in dispelling misconceptions about life with an ostomy.

I want to express my deep gratitude to Alison for sharing her inspiring story and valuable insights. You can listen to our conversation on The Beautiful Bag Podcast here. You can also connect with Allison on TikTok and Instagram, where she continues to inspire and support others.

In closing, let Allison's words resonate: "An ostomy is not the end of your life; it is just the beginning of your life."