Amalia's Journey from GI Struggles to Motherhood

Ladies and gentlemen, today I want to share an extraordinary story with you. It's a tale of resilience, determination, and unwavering courage. It's the story of Amalia, better known as the Ostomy Dietitian on Instagram. Join me as we delve into her remarkable journey, from a lifetime of gastrointestinal struggles to becoming a mother while living with an ostomy.

Amalia's journey through life hasn't been a smooth one. She traces her health challenges back to childhood, where gastrointestinal problems became a constant companion. Vomiting, reflux, and dietary restrictions were part of her daily life. Her college years took an unexpected turn with an appendectomy, adding to her already complex medical history.

As adulthood beckoned, Amalia's health took a dramatic turn for the worse. She became a dietitian in a high-stress environment while grappling with chronic pain, mucus, blood, and frequent bowel movements. But what struck me the most was the theme of advocating for oneself during medical appointments—a challenge we can all relate to.

Misdiagnoses and ineffective treatments left Amalia frustrated. Doctors seemed fixated on her rectum, despite her symptoms escalating beyond the ordinary. Prolapse, fissures, and fistulas became her daily companions—a trio of complications that defied the norm for pelvic floor issues. An international move to Canada brought a different healthcare system and a fresh set of challenges.

But every journey has a turning point, and Amalia's came when she decided to seek specialized care in the United States due to delays in Canada. It was a choice that emphasized the importance of taking control of her health. Her husband, initially shocked by the severity of her condition, became her pillar of support. The toll on her mental and physical well-being during this period was immense.

Amalia's journey led her to the Cleveland Clinic in Florida, where she encountered a renowned colorectal surgeon. Despite not having a formal diagnosis, she made the courageous decision to undergo a temporary ileostomy. The relief she experienced post-surgery and the end of eight years of pain were monumental moments. What's striking about Amalia is her indomitable spirit—she embodies resilience.

Her post-surgery recovery was no walk in the park, involving a month-long hospital stay and the adjustment to life with an ileostomy. Unexpected challenges, like abdominal pain linked to her first-ever period at the age of 29, further tested her resolve. Throughout this challenging period, Amalia emphasizes the crucial role her medical team played.

Amalia's determination to start a family was unwavering. She shares her experiences and the unwavering support of her husband. The decision to have her colon removed marked a significant turning point in her journey towards healing and motherhood.

But hold on, because her journey takes another unexpected twist. Amalia shares her remarkable experience of becoming pregnant naturally after initially considering surrogacy. She sheds light on the unique challenges of managing pregnancy with an ostomy and diversion colitis.

The difficulties didn't stop there. Her second pregnancy was fraught with challenges, including blockages and preterm birth. The emotional toll of being separated from her newborn son, who needed NICU care, was heart-wrenching. Yet, Amalia's determination to continue breastfeeding despite these challenges shines through.

Then came unexpected complications with her ostomy, necessitating revision surgery. She discusses the emotional and physical toll of undergoing surgery with a young baby at home. It's a testament to her resilience and determination in the face of ongoing health challenges.

As we wrap up, let's reflect on Amalia's incredible journey—from ostomy surgery to motherhood. Her passion for working with ostomy patients as a dietitian and the unique perspective she brings to the field are truly inspiring.

I want to thank Amalia for sharing her incredible story with us today. If you want to connect with her, you can find her on Instagram as the Ostomy Dietitian. Don't forget to subscribe, rate, and review the podcast on Apple Podcasts. You can listen to the full episode HERE

Stay tuned for more inspiring stories in the episodes to come.

Love

LeeAnne